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Understanding Dementia and Its Impacts

Understanding Dementia and Its Impacts

By Avenue Institute – Supporting Quality Aged & Disability Care

🧠 What Is Dementia?

Dementia is not a single disease but a syndrome—a collection of symptoms that affect memory, cognition, behavior, and social abilities. It significantly interferes with a person’s daily life and independence.

Dementia is progressive, meaning symptoms gradually worsen over time. Common types include:

  • Alzheimer’s disease (most common)
  • Vascular dementia
  • Lewy body dementia
  • Frontotemporal dementia

Each type affects individuals differently, but core symptoms often include:

  • Memory loss
  • Confusion and disorientation
  • Impaired reasoning and decision-making
  • Communication difficulties

🏠 Dementia in Residential Aged Care

In residential aged care facilities, residents may present with varying degrees of cognitive decline:

🟢 Mild Dementia:

  • Can participate in group activities
  • Require light supervision
  • Remain in general care areas with others

🔒 Moderate to Severe Dementia:

  • Typically placed in secure memory support units
  • Environments include one-way locking systems—entry is easy, but exit requires a code
  • These adaptations prevent wandering, which can lead to distress or danger

Such design modifications are vital in managing risk while preserving as much independence as possible.

🗣️ Communication and Dementia

Communication issues are often among the earliest and most distressing signs of dementia.

Early-Stage Changes:

  • Difficulty finding the right words
  • Repeating questions
  • Losing track in conversations

As Dementia Progresses:

  • Non-verbal communication becomes crucial
  • Use eye contact, gestures, facial expressions, and a calm tone of voice to enhance connection

Example:
A carer notices a resident becomes anxious during showers. By explaining each step slowly and using reassuring gestures, the resident remains calm and cooperative.

💥 Understanding and Managing BPSD

Behavioural and Psychological Symptoms of Dementia (BPSD) occur in up to 90% of cases and are a major reason for caregiver burnout and institutionalisation.

Common Symptoms:

  • Agitation, aggression
  • Depression, anxiety
  • Hallucinations
  • Wandering or resistance to care

🧩 Best-Practice Management of BPSD:

  1. Identify triggers: pain, boredom, hunger, loud noises, unfamiliar settings
  2. Understand personal history: e.g. a retired nurse may resist care as it feels disempowering
  3. Modify the environment: softer lighting, less noise, structured routines
  4. Use non-drug strategies first:
    • Music therapy
    • Pet therapy
    • Massage or aromatherapy
    • Validation and reminiscence therapy
    • Engaging, meaningful activities

Example:
A resident becomes agitated each afternoon. Staff realise this coincides with shift change noise. By offering a quiet puzzle activity in a calm space, the agitation decreases.

  1. Pharmacological support (only when necessary): Antipsychotics or antidepressants may be used with caution if safety is a concern and other methods are ineffective.

🕊️ Advanced Dementia and Palliative Care

As dementia advances, individuals may lose the ability to:

  • Recognise loved ones
  • Speak or move independently
  • Eat without assistance

Care focuses on:

  • Comfort and dignity
  • Swallowing support and dietary changes
  • Palliative approaches that emphasise quality of life

Example:
A person who cannot feed themselves may still respond positively to soft music or the familiar voice of a trusted carer—helping create a peaceful mealtime.

💞 Supporting the Carer

Caring for someone with dementia is often emotionally and physically draining. Carers may face:

  • Chronic stress and fatigue
  • Grief over the person’s gradual decline
  • Social isolation

Support strategies include:

  • Education on dementia and BPSD
  • Respite care to allow breaks
  • Peer support groups and counselling
  • Involving carers in care planning to acknowledge their expertise and strengthen relationships

💬 Final Thoughts

  • Dementia is a complex and deeply personal condition requiring tailored care.
  • Communication must shift toward empathy, patience, and non-verbal cues as dementia progresses.
  • BPSD should be viewed as expressions of unmet needs, not just “challenging behaviours.”
  • Supporting carers is essential for sustainable, high-quality care.

🧩 At Avenue Institute, we believe that knowledge and compassion are the foundation of better aged and disability care.

 

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#Dementia #AvenueInstitute #AgedCare #DisabilitySupport #BPSD #DementiaCare